Rare Disease Day 2015: 42 Days To Go

Orphan Druganaut Blog

February 28, 2015, will be the 8th Rare Disease Day. The event is created and coordinated by EURORDIS along with many international rare disease National Alliances. The purpose of this annual celebration is to raise awareness with the public, researchers, healthcare professionals, and other stakeholders who all have an interest in rare diseases. It is an international advocacy day to spread the message of rare diseases as part of the global healthcare environment.

The theme for Rare Disease Day 2015 is “Living with a Rare Disease”, with the slogan, “Day-by-day, hand-in-hand!” :

Living with a Rare Disease pays tribute to the millions and millions of parents, siblings, grandparents, spouses, aunts, uncles, cousins, and friends whose daily lives are impacted and who are living day-by-day, hand-in-hand with rare disease patients.”

Please reference the rarediseaseday.org website for 2015 for international information on how to create an…

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